Notre Dame Pedi Pals Program is a provider for the Massachusetts Department of Public Health Pediatric Palliative Care Network. Notre Dame Pedi Pals is funded by DPH and is available to all children and families in Massachusetts. Notre Dame serves children and families in the Central Massachusetts area. Pedi Pals enhances existing services to meet the needs of eligible children with any life-limiting illness, even when a cure remains a possibility. Dealing with the diagnosis of a child’s serious illness is difficult for the entire family. It is important that your child, your family, and you get the support and care you need during this hard time. The goal of the Pediatric Palliative Care Network is to improve the quality of life of your entire family through its support and services.
Is my child eligible?
A child must be 18 years old or younger and must live in Massachusetts to receive Pediatric Palliative Care Network services. A physician must state that the child has been diagnosed with an illness that could limit normal life expectancy, such as advanced or progressive cancer; major organ failures; HIV; cystic fibrosis; progressive genetic, neurological or metabolic disorders; or severe cerebral palsy. There are no income limits or citizenship requirements.
How can my child be referred to the Network?
Anyone can make a referral. Referrals may be made directly by a family. They may be made by a child’s physician, nurse or other health care professional, or by others who work with the family. Please call Notre Dame Pedi Pals Program at 508-852-5505.
What services will Notre Dame provide?
- Psychosocial Assessment and case management
- Spiritual care and counseling for the patient and other family members
- Volunteer support
- Pain and symptom management
- Respite care
- Complimentary therapies such as, music therapy, child life services, and massage therapy
- Emergency services
- Bereavement care for family members in the event of death